For a long time my confusion and memory problems were a closely guarded secret. As the symptoms become overwhelming, I shared with my wife. My wife who can't "do" nurturing. Who only lives in the tangible universe. My wife who is scared she "can't do it" (care for me as my mind degrades). Well, my fear is that my needs will be unmet. I have finally shared my fear of having a degenerative disease with no cure that will cut my lifetime. Shorten the years with my fabulous kids. My wife won't be able to "be there" for me. She's struggling with the possibility of a diagnosis. Heaven knows what she'll do if/when it's confirmed.
And have you tried to "google" dementia early-onset? Let me just say there are no easily found support groups or resources for a woman diagnosed with dementia in her mid 40's.
but life goes on... I will live the days I have. I will try, like hell, to not let my confusion and personality changes limit my life.